Jasper
Hello,
My beautiful Jasper was born on the 25th of November 2008. We knew at aprox 17 weeks that Jasper had a severe congenital heart defect. HIs right ventricle was a lot smaller than his left, both the pulmonary artery and the aorta known arise from the right ventricle. His pulmonary valve was also too narrow. I consider myself fortunate to have known so early, as I started learning everything I could. I was surprised to find out how common chd's are, and that they are the most common birth defect. I became angry at how little is done to advocate for congenital heart defects and how such a common childhood killer could get so little research funding.
Jasper is 7 months today, in June of 2009. We had his first heart surgery at 7 days, his next one will be coming up in a few months and not a day goes by that I don't cry and worry about what is going to happen. The wonderful heart families I have met online have helped me through a lot of my worries. However, my heart is saddened by the many babies I have met that have since passed on. My tears are also for them and their families. I wish to do anything I can to advocate more for the children inflicted with this condition.
Rebecca Johnson