Jack
Our son Jack was born Feb 6th, 2009. He has HLHS and has had a more difficult time than many kids with this CHD. He is still in the hospital after nearly 5 months but is making slow progress towards being able to come home. Even with the amazing things the doctors are able to do these days, there is clearly so much they don't know about HLHS and many other heart defects. There so many avenues that need to be investigated and not nearly enough funded research projects going on.
The impact to our family has been great. Our lives have been turned upside down since learning that Jack had this defect and will continue to be so indefinitely, as there is no real cure for this disease and no way of telling how things will turn out for him. Jack has a 5 year old brother and a twin sister. Caring for them while Jack has been in the hospital has been tough and we can tell that they too have been impacted because of the time Jack's condition takes us away from them. It such an emotional drain to have a sick child with such an uncertain future. We only hope that more funding can be allocated to researching these defects and hopefully come up with ways to avoid them or better cures for when they can't be avoided. Please support all efforts to gain attention and funding to help the many thousands of families who are struggling with children impacted by CHDs.